What Epilepsy Really Feels Like: Voices from the Community

Behind every diagnosis is a real story. Living with epilepsy means more than seizures—it means unpredictability, fear, stigma, and often, isolation. But it also reveals strength, resilience, and community. At Kiserem, we’ve met people who were once afraid to speak, who were told they were cursed, or who hid their condition for years. Now, they advocate, educate, and walk in power. In this post, we share raw voices from those who live with epilepsy daily. Their stories remind us: epilepsy doesn’t define a person—but how we treat them can. Let’s listen. Let’s learn. Let’s stand with them.